My daughter is a Wegener’s Warrior

caringbridgeWegener’s Granulomatosis is a multi-system disease, which means many parts of the body may be affected. The nose, throat, lungs and ears usually become swollen and inflamed. The kidneys can be involved, too, while for some people it affects the eyes and skin.

Wegener’s granulomatosis is an uncommon disorder that causes inflammation of your blood vessels, which in turn restricts blood flow to various organs. Most commonly Wegener’s granulomatosis affects your kidneys, lungs and upper respiratory tract. The restricted blood flow to these organs can damage them.

Besides inflamed blood vessels, Wegener’s granulomatosis produces a type of inflammatory tissue known as granuloma, found around the blood vessels. Granulomas can destroy normal tissue. What causes Wegener’s granulomatosis is uncertain. Early diagnosis and treatment of Wegener’s granulomatosis may lead to a full recovery. Without treatment, Wegener’s granulomatosis can be fatal, most commonly from kidney failure. Emma was diagnosed late and her kidneys are affected.

Before reviewing the various symptoms, please remember that not all of them are experienced at once. It may be overtime that you or your loved one will have to experience one or more of the symptoms.  Each WG patient is unique and may or may not experience these in the same order. It took a grueling year for my daughter to be diagnosed!! God saved her live, if any more time had gone by before she was diagnosed, she may have died.

Signs and symptoms may develop suddenly or gradually.

  • Constantly runny nose
  • Nosebleeds
  • Sinus pain and inflammation (sinusitis)
  • Ear infections
  • Cough
  • Coughing up blood
  • Shortness of breath
  • General ill feeling (malaise)
  • Appetite loss
  • Joint aches and swelling
  • Skin sores
  • Eye redness, burning or pain
  • Double or decreased vision
  • Fever
  • Weakness and fatigue, possibly associated with low red blood cell count (anemia)

 

wegeners-pray

THANK YOU for your continued support and being here to read my blog. 

You can read more about my daughter’s journey HERE

SIGNATURE

Save

Save

Save

Save

Simple Home Remedy for Sinus Issues, Flu, Cough, Cold and Pain Relief

This remedy is for a variety of issues, such as colds, cough, sore throat, or body pains and aches. No need for drugs such as Ibuprofin!

Sidenote: During a cold, if you are experiencing a lot of mucous please stop taking anything that has milk, even milk products, especially cheese, yogurt and ice cream. Avoid cold drinks and cold weather (bundle up outside), don’t smoke or get exposed to second hand smoke, once a day put a little warm ghee in both nostrils and sniff, just use your little finger.

Ayurvedic home remedy for flu or pain:
1 tsp pepper (black)
1 tsp cardamom
1 tsp cinnamon
1 tsp ginger
4 tsp raw organic sugar (optional)

GRIND all to a POWDER. Take 2-3x/daily with tsp of raw organic honey until better. The honey is an expectorant and will dry up any kapha (mucous) you are experiencing. Sinus problems are also a sign up too much kapha in your system and can be aggravated by many factors, including cold drinks and dairy products. Sinus problems can lead to bad breath, ear infections, sleep apnea, headaches, snoring and more. I have a jar of this mix sitting out on my counter year round and we all take it each time we feel a bit of cold coming on or for pain relief. IT WORKS! Add turmeric (1/4 tsp) for natural antibiotic and added pain relieving effects.

Recommendations:
Nasya Oil. It lubricates the nasal passage, decongest the sinuses and promotes awareness. Good if you have congestion, nose dryness, stiff shoulders/neck, headaches, hoarseness and mental exhaustion. It is simply applied with the dropper, a few drops into each nostril, sniff it in and that’s it. You can lie down on a bed or stand up and tilt head back.NETI POT, use it daily

STEAM a cup of water add 3-5 drops of organic/natural eucalyptus oil, cover your head with a towel and inhale steam. You can also use ginger instead of the oil, cut up to pieces and boil it in about a cup of water. Cover head and inhale the ginger steam. This will DRAIN the sinuses. If you are out of fresh ginger, use dry as a backup.