My daughter is a Wegener’s Warrior

caringbridgeWegener’s Granulomatosis is a multi-system disease, which means many parts of the body may be affected. The nose, throat, lungs and ears usually become swollen and inflamed. The kidneys can be involved, too, while for some people it affects the eyes and skin.

Wegener’s granulomatosis is an uncommon disorder that causes inflammation of your blood vessels, which in turn restricts blood flow to various organs. Most commonly Wegener’s granulomatosis affects your kidneys, lungs and upper respiratory tract. The restricted blood flow to these organs can damage them.

Besides inflamed blood vessels, Wegener’s granulomatosis produces a type of inflammatory tissue known as granuloma, found around the blood vessels. Granulomas can destroy normal tissue. What causes Wegener’s granulomatosis is uncertain. Early diagnosis and treatment of Wegener’s granulomatosis may lead to a full recovery. Without treatment, Wegener’s granulomatosis can be fatal, most commonly from kidney failure. Emma was diagnosed late and her kidneys are affected.

Before reviewing the various symptoms, please remember that not all of them are experienced at once. It may be overtime that you or your loved one will have to experience one or more of the symptoms.  Each WG patient is unique and may or may not experience these in the same order. It took a grueling year for my daughter to be diagnosed!! God saved her live, if any more time had gone by before she was diagnosed, she may have died.

Signs and symptoms may develop suddenly or gradually.

  • Constantly runny nose
  • Nosebleeds
  • Sinus pain and inflammation (sinusitis)
  • Ear infections
  • Cough
  • Coughing up blood
  • Shortness of breath
  • General ill feeling (malaise)
  • Appetite loss
  • Joint aches and swelling
  • Skin sores
  • Eye redness, burning or pain
  • Double or decreased vision
  • Fever
  • Weakness and fatigue, possibly associated with low red blood cell count (anemia)

 

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THANK YOU for your continued support and being here to read my blog. 

You can read more about my daughter’s journey HERE

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I LOVE My Clients…Thank YOU!

I have grown because of my work with you. Thank you….

My clients teach me so much. My clients have had many challenges and seek me out as their Massage Therapist to find the ability to quiet their mind.

My clients have been lost. My clients are very creative, although most don’t know it…YET.  They say to me “You inspire me…what would YOU do?” I answer…hoping my life wisdom will bring you some relief.

You want to be next to the Dalai  Lama, only to find out…you are already that and so much more – your angels are freeing and  transforming the world, yourself and your family in powerful ways.

Thank you for mirroring my own faults, insecurities and challenges. I discover that your struggles are not much different from mine and you and I walk this life journey on this earth together.

Thank you for sharing your fears with me and knowing that my dedication to you did not change after you confessed your truth during our session. I admire your love, laughter as well as tears, this is how you discover your true self.

Thank you for helping me understand that I am a professional, because of you I am at work on time…even if sometimes I don’t “feel” like it! When I see you, I instantly feel relaxed, full-filled and satisfied. My treatment with you is like treating myself.

I love you, my clients….my clients who have been to Paris to model, those who are love sick, those who come to see me weekly to prevent stress, clients who travel the world serving in the Peace Corps., those who overcame cancer and those who overcame loss, those growing new life, those who save lives and those who care for our future generation All.Day.Long.

Thank you for all the lessons, love, gifts, growth and repeated reminders that we are all one. And lastly, thank you for trusting me with your healthcare needs and trusting my ability, as a highly trained professional, unconventional tattooed Bob Marley and Wailers fan (since the age of 11) and mother of three, to care for you.

Namaste…

Nama means bow, as means I, and te means you. Therefore, namaste literally means “bow me you” or “I bow to you.”

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