My daughter is a Wegener’s Warrior

caringbridgeWegener’s Granulomatosis is a multi-system disease, which means many parts of the body may be affected. The nose, throat, lungs and ears usually become swollen and inflamed. The kidneys can be involved, too, while for some people it affects the eyes and skin.

Wegener’s granulomatosis is an uncommon disorder that causes inflammation of your blood vessels, which in turn restricts blood flow to various organs. Most commonly Wegener’s granulomatosis affects your kidneys, lungs and upper respiratory tract. The restricted blood flow to these organs can damage them.

Besides inflamed blood vessels, Wegener’s granulomatosis produces a type of inflammatory tissue known as granuloma, found around the blood vessels. Granulomas can destroy normal tissue. What causes Wegener’s granulomatosis is uncertain. Early diagnosis and treatment of Wegener’s granulomatosis may lead to a full recovery. Without treatment, Wegener’s granulomatosis can be fatal, most commonly from kidney failure. Emma was diagnosed late and her kidneys are affected.

Before reviewing the various symptoms, please remember that not all of them are experienced at once. It may be overtime that you or your loved one will have to experience one or more of the symptoms.  Each WG patient is unique and may or may not experience these in the same order. It took a grueling year for my daughter to be diagnosed!! God saved her live, if any more time had gone by before she was diagnosed, she may have died.

Signs and symptoms may develop suddenly or gradually.

  • Constantly runny nose
  • Nosebleeds
  • Sinus pain and inflammation (sinusitis)
  • Ear infections
  • Cough
  • Coughing up blood
  • Shortness of breath
  • General ill feeling (malaise)
  • Appetite loss
  • Joint aches and swelling
  • Skin sores
  • Eye redness, burning or pain
  • Double or decreased vision
  • Fever
  • Weakness and fatigue, possibly associated with low red blood cell count (anemia)

 

wegeners-pray

THANK YOU for your continued support and being here to read my blog. 

You can read more about my daughter’s journey HERE

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